It's been a couple of weeks, but I wanted to post one more update on this project.
I am so incredibly grateful that I was able to participate in my brother's fundraising efforts. All 65 of the roses sold in 36 hours, raising nearly $1000 for the Cystic Fibrosis Foundation. Thank you so much. In all, my brother and Matt raised over $18,000, and, in total, the 36 hikers raised over $160,000.
John, Thea, and I drove to Banner Elk, NC on Friday to enjoy a pasta dinner with the hikers, supporters, and the CFF staff. During the dinner, my brother spoke about the ways that Caroline's CF diagnosis has impacted their family - both emotionally and in the ways that their life must accomodate her necessary daily treatment. It was very powerful to witness.
The group of 36 hikers rose at 2:30 am on Saturday morning for opening ceremonies and to prepare for the hike's start at 4 am.
Here are some photos from the hike. These were taken by my brother and Matt, and I did a little bit of processing.
In all, there was 7,974 feet of elevation gained and 8,719 feet of elevation lost, including 2,136 feet of elevation gained in 2.7 miles hiking up
At times, they hiked through dense fog. Towards the end of the hike, they encountered 40-50 mph winds. There was some pretty extreme fallout on the trail from the weather North Carolina experieced this past winter.
The following are shots I took at the mid-way aid station.
My brother, Rebecca, and sweet Caroline.
While BJ and Matt continued the second half of the hike, Thea and Baker enjoyed some cousin bonding time. Here, Baker is teaching Thea how to swing on her tummy.
I am so proud of my brother for undertaking this tremendous endeavour, and so grateful that Matt was there to do it with him.
In a recent email sent to those who supported "Team Caroline," my sister (in-law) provided this update on Caroline:
Despite a current cold and two ear infections, Caroline is doing great. We had our first appointment at the UNC Cystic Fibrosis Center this past Wednesday and were beyond impressed. The doctors, nurses, PT's, nutritionist, and other team members were all wonderful, extremely knowledgeable people. We feel so blessed to be surrounded by people with such experience and wisdom about CF. We have decided to continue her care exclusively in Chapel Hill at UNC with Dr. Retsch-Bogart, who is a tremendously talented CF researcher and doctor. UNC is the hot-bed of CF research right now. We're currently considering having Caroline be part of a clinical trial for one of the latest therapies (hypertonic saline) not yet fully proven in infants, but one that has delivered outstanding results in adults.
Again, thank you SO much for your support. I really cannot find words to describe what this means to me and my family. I am forever grateful.